West Virginia Perinatal Loss Guidelines for Care & Legal PaperworkWest Virginia Perinatal
Loss Guidelines for Care
& Legal Paperwork


June 2018

West Virginia Bereavement Care and Reporting Guidelines for Perinatal Infant Death
Funding for the development of the Bereavement Care and Reporting Guidelines was provided by the West Virginia Department of Health and Human Resources and the West Virginia Higher Education Policy Commission. Our sincerest appreciation for the support of this project that will assist professional staff in caring for bereaved families.

The West Virginia Perinatal Partnership would like to thank the West Virginia Department of Health and Human Resources, Office of Maternal, Child and Family Health Director, Christina Mullins and Denise Smith, Director, Perinatal Programs.

For questions, or to set up Nursing or Physician Grand Rounds staff education, contact:

Christy Orndorff, BSN, CHPPN, CPLC Pediatric Supportive Care Nurse Coordinator
WVU Medicine Children’s
orndorffc@wvumedicine.org
304-598-4000 ext 71102
or
Shauna Lively, RN, EdD, LCCE
Outreach Education Director
West Virginia Perinatal Partnership
Shauna.Lively@gmail.com

 


West Virginia Perinatal Partnership Bereavement Team

Denise Smith, Perinatal Programs Director
Office of Maternal Child & Family Health
denise.a.smith@wv.gov

Shauna Lively RN, EdD, LCCE
West Virginia Perinatal Partnership
Outreach Education Director
shauna.lively@gmail.com

Mary Meadows, RNC
Perinatal Loss Coordinator
Cabell Huntington Hospital
marymead@aol.com

Alexandra French, RN, LCCE
Co-chair Bereavement Committee
Cabell Huntington Hospital
aafrench212@gmail.com

Christy Orndorff BSN, CHPPN, CPLC
Pediatric Supportive Care Nurse Coordinator
WVU Medicine Children’s
orndorffc@wvumedicine.org

Lee Ann Romeo, RNC
Patient Educator / Supervisor
United Hospital Center
romeol@wvumedicine.org

Summer Hepler RN, BSN
Bereavement Coordinator
Greenbrier Valley Medical Center
shepler@plida.org


Introduction

Dear colleagues,
When parents experience the loss of a child whether by miscarriage, stillbirth, or early perinatal loss, they begin the long process of bereavement. At first, the experience can produce a myriad of feelings: shock, numbness, denial, and disbelief. Other emotions begin to emerge such as guilt, anger, loneliness, despair, sadness, and regret. The loss of a child affects siblings, family, healthcare providers and community.

A bereavement program offers support for parents, siblings, grandparents, extended family, community, and healthcare staff, which often begins before death and continues well beyond discharge. Bereavement support includes counseling, spiritual care, supportive presence, silence and active listening, as well as validation and reassurance. This involves assisting with the difficult end-of-life decisions including: goal setting; pain and symptom management; disposition of the body; identifying support systems and community resources; legacy building and memory making.

Legacy building is about giving meaning to life and living. You can help families preserve these experiences by offering heirloom photography, hand/footprints, and plaster and clay molds of hands and feet, charm impressions, etc. Photographs (when appropriate) are one of the most precious and tangible mementos for a family. These tangible reminders show the love and bond that was produced and shared with their baby regardless of the some-times brief arc of life. These portraits will last for generations, and will honor and remember a life that is forever loved and cherished. Prints, molds, and charms not only provide lasting keepsakes, but for some families the activity itself becomes a formative memory.

Support can continue beyond discharge through follow up phone calls, personalized bereavement/sympathy cards, and support groups. It is important to remind every family they are not alone in the days, weeks, months and years to come. You can remain a resource for these families and/or help them to connect to resources in their home communities. Consider coordinating a yearly Service of Remembrance for families to come together to honor their child and celebrate life.

The following pages are meant to be a guide with suggestions and recommendations for supporting the families we serve across the state of WV, in hope of standardizing best practice when loss has occurred.

Sincerely,
WV Perinatal Partnership Bereavement Team


Table of Contents

Download the Individual Sections in the Table of Contents to the left.

SECTION 1: FAMILY CARE  – (Download Section 1)

Family Care Checklist
Postpartum Care
Breast Care
Sibling Care
Heirloom Photography
Post Mortem Care
Follow Up After Discharge
What To Say
What Not To Say

SECTION 2: GUIDELINES  – (Download Section 2)

Definitions & Classifications
IUFD (Intrauterine Fetal Demise)
Live Birth (Dies After Birth)
ITOP (Induced Termination of Pregnancy)
ITOP, Autopsy
Home Burial, Cremation
Funeral Assistance

SECTION 3: SAMPLE POLICY –  (Download Section 3)

Sample Policies

SECTION 4: FORMS –  (Download Section 4)

Referenced Forms

SECTION 5: RESOURCES – (Download Section 5)

Bereavement Tangible Memory Items
Bereavement Books/Pamphlets
Bereavement Child Loss Support Groups
Bereavement Organizations For Professional Resources & Support
DHHR
Additional Contacts

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